Monday, November 24, 2014

How Do You (TRY HARD to) Prevent Teen Suicide ?

Philadelphia Inquirer, Sunday, November 23, 2014, HEALTH section, Front Page, Page G1:



Gallery: Awareness key to preventing teen suicide




Awareness key to preventing teen suicide

VAL B. MINA / Sacramento Bee
Why young people take their lives remains a mystery. Even known risk factors - such as a history of suicide attempts, a family history of suicide or mental illness, substance abuse, recent stress, and easy access to lethal methods - can't always explain such a tragedy. Nor does having risk factors mean someone will commit suicide.
But one thing is clear: Prevention methods, including greater awareness by teachers, parents, and friends, can help reduce suicidal behaviors.
The Pennsylvania Child Death Review team investigates the circumstances around a child's death and what factors might have prevented it. Of the deaths reviewed in 2011, local teams found 86 percent of suicide deaths were preventable, says Erich Batra, co-chair of the Pennsylvania Youth Suicide Prevention Initiative and medical director of the review team.
Suicide is now the third-leading cause of death among teenagers in Pennsylvania and fourth in New Jersey. (It's second nationally.) The 2013 Youth Risk Behaviors Survey shows that 17 percent of respondents considered suicide in the preceding 12 months, 13.6 percent had developed a plan, and 8 percent reported trying to take their own lives.
In response, Pennsylvania recently enacted a law, sponsored by State Rep. Frank Farina (D., Lackawanna), requiring school personnel to be trained in suicide prevention and mental health awareness and requiring school districts to develop policies on youth suicide. Other components include a suggested curriculum for students to raise prevention awareness and understand mental-health issues more broadly. Implementation will begin in the 2015-16 school year.
"A lot of people came together to make this bill a reality," says Batra. "It's amazing how many people suicide has touched. Everyone has a story."
Online materials for schools on prevention, intervention, and postvention (dealing with the effects of a death) are available free or at low cost.
"We needed to increase awareness," says Batra. "The goal was not to make teachers into mental-health counselors, but to make people aware of the need to refer students who might be having trouble to a trained counselor.
"We feel like you need three elements. You need policy so people know the infrastructure: who does what when something happens. The staff needs to be trained to know policies and procedures for answering children's questions. And students need to understand that when they notice a friend in trouble, some secrets should be shared."
Eleven years ago, a 15-year-old male student in Joe Vulopas' high school English class at Cocalico High School in Lancaster County committed suicide. After hearing the news, Vulopas - the last teacher to talk with the student - headed back to his classroom to stare at the student's desk and reconsider what he might have missed or done.
"If you had talked to me about depression then, I would have had no idea," says Vulopas, who testified in hearings for the suicide-prevention initiative.
Today, besides teaching English, Vulopas serves as executive director of Aevidum/"I've Got Your Back," a club started by Cocalico students in response to the young man's death. Aevidum has 75 chapters in high schools across the state, with plans to expand into high schools and colleges in Philadelphia.
Serving students in kindergarten through 12th grade, the group uses original songs, videos, and public-service campaigns to spread its message of openness, connectivity, and sensitivity in dealing with suicide and depression.
"Factors which lead a young person to take their life are never simple," says Batra. "Sometimes changes that occur are part of normal adolescence, like changing friendships or withdrawal, which can make factors for suicide tougher to pinpoint."
There are also misconceptions. Batra says people may draw a direct link between bullying and suicide, but although both the bullied and those who bully are at a higher risk for suicide, "there is little research on an exact cause-and-effect relationship."
To protect students at risk, Batra says, all members of the school community need to be on alert. "Behavior that might not be noticed by a teacher might be noticed on a school bus or playground," he says.
Suicide-prevention awareness can also be tied into school shootings, which often involve not only homicides, but also suicides.
"The person often has mental illness and knows that they're not going to survive the episode," says Batra. "From Sandy Hook to Columbine, it goes back to promoting a culture of tolerance and acceptance in the schools."
The next steps include meetings with the Pennsylvania Department of Education to work out a model policy on suicide prevention for schools. Teachers can now receive training through an online program developed by the Society for Prevention of Teen Suicide and receive ACT 48 credits, all at no cost to school districts.
"Suicide is not only the death of an individual," Batra says. "It affects the family and the school at such a raw level. Anything we can do to help we need to do it."


RESOURCES FOR SUICIDE PREVENTION

The American Foundation for Suicide Prevention www.afsp.org
The Society for the Prevention of Teen Suicide parent video www.sptsusa.org
Aevidum/"I've Got Your Back" http://aevidum.com

Friday, November 21, 2014

Surviving Congestive Heart Failure/AFIB in Your 50s !!




November 21, 2014

Well today things are looking a bit better.  Recently I had an echocardiogram (pictures of my heart; they look a lot like a baby sonogram believe it or not).  My heart doctors have determined from the echo that I can now stop wearing my portable defibrillator and that I don't need currently to have a defibrillator installed into my body.  My heart is at about 45% of operating capacity now.  Apparently in a healthy person the heart operates at 80%.  When I entered the hospital in July my heart was at 20% or a bit less.    45% is considered a vast improvement and the thinking is that my heart will continue to improve.  Occasionally my heart feels a bit queer but that is considered OK.  I feel no pain.

But that has been the case since it was determined that I had Congestive Heart Failure (CHF) in July.  Again to me CHF is a terrible old-fashioned phrase that should be updated, made new and improved.  CHF as a phrase scared me (almost to death ! ha-ha!).  I heard the word "failure" and I thought of death, my death.  CHF made me think of very unhealthy old people, not me.  Being "only" in my 50s I felt I was too young to die.  When my heart was doing crazy things in late July I felt nothing.  I felt no pain or discomfort in my heart.  (Other than not being able to walk, breath or talk.)  They can do wonders these days with CHF, things they could not do even 5 years ago.

When my heart rate was racing upward to crazy high levels or dropping precipitously to too slow beats I felt nothing.  This atrial fibrillation or afib or abnormal heart rhythms is something they addressed when they did an ablation on me to stop/cut off/"kill" the flow of some extra electrical currents I had flowing in my heart.  The ablation has been successful.  In the hospital my afib caused the monitors attached to me to go haywire and caused alarms to literally go off several times.  When this happened 2 doctors and 3 to 4 nurses came running into my room a number of times expecting to find me unconscious and about to die, or perhaps already dead.  Instead I was always awake and I always felt nothing, no pain or discomfort, in fact I felt well.?!  Go figure.  Strange but true.

The other issue with my heart was the viral infection that had been sitting in my heart dormant for about a couple of years per the doctors' estimation, from some cold I had fought off a couple of years ago.  They determined this from a cardiac MRI they did in the hospital.  It was terrible!!!!!!!!!  I had weights on my chest and all sorts of monitors and I was in the machine for two and 1/2 hours (2 1/2).  It was very claustrophobic and difficult.  I wouldn't wish it on my worst enemy.  I chickened out twice (with all the stuff on my chest they couldn't get me into the machine properly two times; both times they got me into the machine for a couple of minutes and then had to take me out because the fit was not right.  Each of these times I said no more I give up and I physically climbed to a sitting position.)  The third time was the charm!  Frankly the only thing that got me through it besides a great nurse was thinking about all of you, my family, each and every one of you separately and together, and Pressler, Winn and Amy.

So there you are just some thoughts for you guys.  Love ME

Monday, November 17, 2014

It Takes A Village To Help Elderly Remain Independent




Philadelphia Inquirer, Friday, November 14, 2014


It can take a village to help remain independent

By Neville E. Strumpf






























The statistics are startling:
Soon, 25 percent of the U.S. population will be over 65, and 70 percent of us will need care of some kind either in our homes or in an institution.
These statistics, which were aired during a segment on the realities of aging on CBS Sunday Morning last month, should serve as a wake-up call to all of us. Putting our heads in the sand and hoping for the best are not viable strategies. Fortunately, those of us who live in and love the opportunities in Philadelphia have options.
The Sunday Morning feature put the spotlight on Beacon Hill Village in Boston, the first in what is now a national movement to help elderly people stay in their own homes but provide access to assistance as needed. The "village" movement began in 2001, with the group in Boston, but now boasts more than 140 villages across the country, with 100 more under development.
Philadelphia currently has three such villages. The largest and oldest of them is Penn's Village, where I serve on the advisory council. It offers neighbor-to-neighbor volunteer services in an area that stretches from Washington to Girard Avenue, and from river to river.
Other villages that have been established in the area include the East Falls and Mutual Mount Airy communities in Philadelphia, and the Brandywine Village Network in Delaware.
Time and again, the village network proves itself a boon to members who find it difficult to get around as easily as they once did. Hundreds of men and women in our neighborhoods already embrace Penn's Village in a variety of capacities - whether receiving services or acting as volunteers or serving on committees.
What do villages do? Primarily, they open the doors to a number of opportunities to invest in your neighborhood. Nearly everyone can benefit in some capacity.
At Penn's Village, members - we call them villagers - receive services such as transportation to medical appointments or grocery shopping, training on mobile phones or tablets, and carefully vetted lists of local service providers. If you need a ceiling light bulb changed, a volunteer will climb a ladder to do that for you. Or he'll put together that lamp you ordered through the mail. Members pay annual dues, and the volunteer-provided services are free.
In many ways, these villages are ageless. Men and women within the community frequently find they play changing roles. Many of our members have served as volunteers at some point but then later found that they could use the same kind of help they once provided.
There is a power to these grassroots organizations that tailor their services to local needs. They help all of us make a reality of the dream to stay in our own homes, and as independent as possible, as we age.
We are lucky to have a variety of such organizations in our area. I encourage adults of all ages to learn more about the services offered to them, or to loved ones, without delay. Help, and peace of mind, are available.

Neville E. Strumpf is a retired professor at the University of Pennsylvania School of Nursing, past director of the gerontology nurse practitioner program, and founding director of the gerontology research center. strumpf@nursing.upenn.edu

Thursday, October 30, 2014

Brittany Maynard: Death with Dignity or Exploitation? Terminally Ill, She Plans to Take Her Own Life

please make sure you scroll down all the way


Philadelphia Inquirer, Thursday, October 30, Front Page, Page A1:



Brittany Maynard: death with dignity or exploitation?

Brittany Maynard and husband Dan Diaz. (Courtesy: Tara L. Arrowood)
Brittany Maynard and husband Dan Diaz. (Courtesy: Tara L. Arrowood)
Brittany Maynard and husband Dan Diaz. (Courtesy: Tara L. Arrowood)GALLERY: Brittany Maynard: death with dignity or exploitation?
Weekly Circulars
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A California newlywed, Brittany Maynard, 29, diagnosed with a swift and fatal brain cancer, has moved with her husband to Oregon so she can have control at the end of her life under Oregon's pioneering death-with-dignity law.
She has legally obtained a lethal prescription and intends to use it, possibly as early as Saturday. And she has partnered with Compassion & Choices, an advocacy group pushing for more laws like Oregon's, to use her death to raise awareness and support for physician-assisted suicide, now available in only five states.
Her story and video went viral on the Web in the last three weeks. Since Oct. 6, nearly nine million people have viewed her six-minute video on YouTube - and a new video will be released today. More than three million have visited the Compassion & Choices websites.
"This chick is a hero," said Martha Frye Kienzle, who graduated from Jefferson Medical College in May and is now a  pediatric resident  in St. Louis, in a post on Facebook.
MORE COVERAGE
  • Everyone's brain generates emotions the same way
  • Asked to elaborate, Kienzle e-mailed: "She's setting an example. People die terrible deaths in this country. And the issue of physician-assisted suicide has really dropped off the radar in recent years. It should be everyone's right to do what she's doing."
     Many disagree.
     Ira Byock, a hospice and palliative-care physician and author of Dying Well, is a longtime opponent of assisted suicide. He says the exploitation of Maynard's case "borders on pornographic. No light here and a lot of heat."
    Maynard, of San Francisco, was diagnosed in January. By April, she had been given six months.
    "There is not a cell in my body that is suicidal or that wants to die," Maynard told People.com. "I want to live. I wish there was a cure for my disease, but there's not.
    "My glioblastoma is going to kill me," she added. "I've discussed with many experts how I would die from it, and it's a terrible, terrible way to die. Being able to choose to go with dignity is less terrifying."
    The Oregon Death with Dignity Act was extremely controversial when enacted in 1997.  Oregon voters twice had to pass a statewide referendum to authorize it.  Ultimately, the law was upheld by the U.S. Supreme Court, which has ruled that assisted suicide is not a constitutional right but that the issue should be left to the "laboratory" of the states.
    Washington and Vermont have passed laws almost identical to Oregon's, and courts in New Mexico and Montana have granted citizens in those states similar rights.
    The Oregon law states that if a person is found by two doctors to be terminally ill with six months or less to live and deemed mentally competent, the patient can obtain a lethal dose of drugs. The dying must ingest the drugs themselves without any assistance from doctors or loved ones.
    Versions of the Oregon law are awaiting legislative action locally. John Burzichelli, an assemblyman from Gloucester County, predicts what he calls aid-in-dying legislation will be passed by the New Jersey Assembly by the end of 2014.
    "I think it could get out of the Senate," said Burzichelli, a sponsor. "I don't know if this governor signs it. But things change."
    Prospects are dim in Pennsylvania. "Lying in quiet repose in committee" is how Daylin Leach, a state senator from Montgomery County, described his bill's status.
    In 14 years, 1,173 Oregonians have had prescriptions written under the law; 752 have used them to die, on average 53 a year.
    Many who obtain the drugs choose not to take them. Maynard has said that she feels no pressure to take the drugs but is glad to have them.
    "I can't tell you the amount of relief it provides me," she said. "I know it's there when I need it."
    Bioethicist Arthur Caplan at New York University strongly opposed the Oregon law at first but now has no objection. Time has shown him the law is rarely used and is not abused.
    He says Maynard's impact could be huge politically.
    "She is a newlywed, attractive, passionate, and committed," he said. "This shifts the issue of physician-assisted suicide from baby boomers to millennials. Critics of legalization know this and are especially worried. They have seen what can happen when young people are mobilized - Obama's election, gay marriage, and marijuana legalization."
    Byock, who retired last year as head of palliative medicine at the Dartmouth Hitchcock Medical Center in Lebanon, N.H., said America knows how to provide compassionate care at the end of life but does not do so, calling that a national disgrace.  Too often, American doctors are not trained in end-of-life care. Patients are impoverished trying to pay for medical and long-term care. Nursing homes are poorly staffed and people are left feeling unwanted and undignified.
    "I and the teams with whom I've worked have cared for hundreds of people as tragic as Brittany Maynard," he said. "We didn't let any of them die suffering. They died as gently and peacefully as I hope Brittany Maynard dies. This is possible today with really good medical care, including palliative care and hospice."
    Barbara Coombs Lee, architect of Oregon's law and head of Compassion & Choices, debated Byock on public television.
    "Hospice and palliative care is the gold standard," she told Byock. "It's wonderful. But it's not a miracle. And it cannot prevent the kind of relentless, dehumanizing, horrific decline that Brittany faces, where her disease will cause unending seizures and headaches and nausea and vomiting and pressure in her brain, and the loss of every bodily function, including thinking and moving.
    "No palliative care, terminal sedation, or promise of effective palliative care can give Maynard the thing she treasures now," Coombs Lee said - "the hope of gaining control over her disease before it takes her life."
    Maynard has objected to Byock's characterization that she was being exploited. She and her husband made the decision to move to Oregon long before she got involved with Compassion & Choices. And the amazing public respone has given the end of her life meaning. As she wrote on a Compassion & Choices website last week, "something monumental has started to happen."
    On Friday, Maynard also posted photos of a trip to the Grand Canyon, and expressed "thanks to the kindness of Americans around the country who came forward to make my 'bucket list' dream come true."
    Unfortunately, she added, the following morning she had her worst seizure so far and was unable to speak for hours.
    She has said the date she ends her life is not set in stone but would depend on how she's feeling.
    Her original plan was to celebrate her husband's birthday on Friday, and then on Saturday, surround herself with the people she loves, play her favorite music, and die peacefully in her own bed, her husband beside her.

    Read more at http://www.philly.com/philly/health/20141030_Brittany_Maynard__death_with_dignity_or_exploitation_.html#pjkwYae6yKAdhgv4.99

    Monday, October 13, 2014

    A Slip-Up on the Way to Eternity=Gravestone Mistake




    Wall Street Journal, Monday, October 13, 2014    Journal Report / Encore  Page R8



    An Error Set in Stone—at the Cemetery

    A Family Gets to the Bottom of a Slip-Up, and Learns They Aren’t Alone

    ENLARGE
    ROSS MACDONALD
    “There’s been a bit of family drama,” my brother Doug warned as I was packing an overnight bag to head to my father’s burial service in West Chester, Pa.
    “They got the name wrong on Dad’s gravestone.”
    “How could that possibly have happened?” I asked, incredulous.
    “I don’t know, but I’m driving to the cemetery right now to take a look. I’ll send you a picture in a few minutes,” Doug said.
    Sure enough, my phone soon flashed a picture of the error—set in stone:
    HUGHES
    1930 JAMES A., JR. 2013
    AKA JAMES GLEASON
    1942 MADELEINE M.
    The first two lines and the last line were fine. My father, a former sales manager for a chemical company, was born James Aloysius Hughes Jr. in 1930, and he died suddenly from lung disease last December at age 83. He married Madeleine 29 years ago, and she plans to be buried next to him.
    It was the third line, the AKA, that was the problem.
    Instead of “James Gleason” it was supposed to say “James Gregory,” the name my father adopted, after converting to Catholicism, in honor of his priest, Msgr. Gregory J. Parlante at St. Cornelius Catholic Church in Chadds Ford, Pa. And that made the mistake even weirder.
    Finding the Humor
    My father, the funniest and most supportive person I have ever known, was a self-proclaimed agnostic for most of his life, until our stepmother persuaded him to attend services with her at St. Cornelius. He was immediately taken with Msgr. Parlante, who shared the same hearty sense of humor.
    The original gravestone with the error, ‘Gleason.’ENLARGE
    The original gravestone with the error, ‘Gleason.’ DOUGLAS HUGHES
    The corrected gravestone.ENLARGE
    The corrected gravestone. MADELEINE HUGHES
    While our father had told us five years ago that he planned to convert to Catholicism, my brother and I were surprised to learn during his funeral service in January that he had taken the name James Gregory after being baptized. Msgr. Parlante delivered a jovial account of his endless theological debates with James Gregory.
    We waited five months to bury Dad’s ashes, since the Pennsylvania ground seemed too frozen in January and that allowed time for the granite gravestone to be created in Vermont and delivered—just in time for the burial ceremony.
    About 20 close friends and family members gathered on that brilliantly sunny morning on the green grass of Birmingham-Lafayette Cemetery in West Chester.
    “What’s up with Gleason?” my cousin asked in a hushed tone.
    I walked over to check in with Msgr. Parlante, who was preparing to deliver the service. “How did this happen?” I asked. “Gleason?”
    “Yes, and awaaay we go!” he laughed heartily, using the comedian Jackie Gleason’s trademark line. Msgr. Parlante confided, remarkably, that his own family’s gravestone in Resurrection Cemetery in Bensalem, Pa., has errors, too.
    A Common Problem
    So how often do these grave errors occur and why? Engraving a tombstone, meant to last for an eternity, hardly seems like the right moment to skip double-checking the facts.
    Robert Fells, executive director of the International Cemetery, Cremation and Funeral Association in Sterling, Va., says he doesn’t know of anyone tracking the number of grave errors, or even, for that matter, the total number of gravestones and cemeteries in the U.S. That said, he estimates there are about 75,000 to 100,000 cemeteries.
    We do have an idea of how much of a problem gravestone errors have been for veterans. Three years ago, a government report showed that thousands of gravestones in Arlington National Cemetery might have errors. A spokeswoman for the cemetery says they are in the process of correcting 4,125 grave markers—out of about 280,000 at the site—marred by mistakes including typos, misspellings and incorrect facts.
    Gravestone makers say families are often at fault. While many companies send proofs to customers before setting a name in stone, stressed and often aging family members don’t always catch the errors. Small mistakes, one letter or number, can often be patched and redone with barely a trace. But with big errors, the engraver usually has to start over.
    “This has been one of our worst years for families not catching typos,” says D.J. Bott, a co-owner of Bott & Sons Monument Co. in Brigham City, Utah. So far this year, he says, they have created about 225 gravestones and had to correct about 19 of them.
    “Sometimes folks get confused,” he says. “They don’t remember the exact date someone died.” A common mistake is to look at the funeral program and use the burial date instead of the date of death.
    Taking the Blame
    In our case, one thing was clear: The error wasn’t the fault of my stepmother’s handwriting. Right before the burial service began, she unfolded the original yellow order form from Chardy Memorials in Kennett Square, Pa. It clearly said, “AKA James Gregory.”
    Instead of a proof, however, she said she received a notice that the stone had been set in place. Tearfully, she had gone to the cemetery alone to take a peek—and confronted “Gleason.”
    “I didn’t know whether to laugh or cry,” she recalls. She finally looked up at the sky and laughed. “I can’t wait to see what you had in mind with this,” she said out loud.
    While my stepmother’s faith seems to have trumped her shock, I decided to track down the person who came up with “Gleason.” How do you accidentally engrave a tombstone with an entirely different name?
    I called Chardy Memorials and spoke with Kenneth Roberts, the owner and grandson of the founder.
    “It was my fault,” Mr. Roberts said apologetically. “I placed the order with the manufacturer as ‘AKA James Gregory,’ the way it was supposed to be, but when it came back as a proof, I missed it.”
    Mr. Roberts said he has been in this business for 45 years and has had only one other correction, 37 years ago, when a date of Aug. 30 inadvertently became Aug. 31. He called the family to double-check, and since they were in a hurry, he read it to them over the phone, accidentally reading it as Aug. 30.
    “We always guarantee our work,” he added. He noted that James Gleason was the name of a well-known actor who made films from the ’20s through the ’50s, but he doubts the young graphic designer who worked on the stone knew of him. And he declined to let me speak with her directly.
    “I don’t make mistakes very often,” said Mr. Roberts with a sigh. But, he added, “I’m human.” (He did quietly replace the stone in August.)
    Inspiration for a Toast
    No harm done, really. The burial service went well. My stepmother carried the beige urn containing my father’s ashes to a pedestal next to the gravestone, and Msgr. Parlante blessed the urn with holy water. I read a poem, “To Laugh Often and Much,” incorrectly attributing it to Ralph Waldo Emerson, as many people do online. (Should have double-checked. The poem seems to have a long and convoluted history, making the authorship unclear.)
    After the ceremony, we gathered for lunch in a nearby Italian restaurant and raised our glasses in a hearty toast to my father: “To Gleason!”
    He would have laughed.
    Ms. Hughes is a writer in California and New York. She can be reached at encore@wsj.com.